And It Is What It Is

 

One of the statuary at Bernabela Ramos Parque in Santa Cruz, a nearby city I go to shop at. The center of the city is one of the most interesting shopping areas around. I usually park near this parque or down by the Plaza de los Mangoes when I do a shopping run there. This park is still closed due to the pandemic.

I feel like the guy in the statue, in the grips of some strange beast today. I was initially going to rant that there's nothing wrong with someone deciding to read banned books, or how we don't support abusive Quiverfull enforcers just to piss off someone we dislike, but no, today is just all the way around bad for other reasons.

Woke up this morning, started the roll over and slide off that is sleeping in our tall waterbed, and lost my balance. Fell. Balance worse again after two weeks of dealing with this. Fell rounding the bed and trying to navigate around my desk chair. Fell trying to get to the bathroom, ending up hugging the wall on the way back to the bedroom.

After two weeks where I had almost gotten used to not feeling the floor very well beneath my left foot, and learning to walk that way without a cane. I'd gotten steadier. Today was a shitshow of no balance and nausea.

So much for Lyrica.

In this week I've had a Cat scan with contrast, had it sent off to my C.R. neurologist, sent it off to my mast cell doctor in the States, set off to my neurologist in the States. The only thing anyone can agree on is it's not heart, it's not a stroke, it's not bulging discs in my neck. Now they are saying it's likely not MS either. The best anyone can come up with is that it is somehow MCAS related, compressed nerve bundles and the like. I don't know, I just now the pins and needles 24 hours a day, 7 days a week is just way too painful without the balance issues and everything else. 

So I'm going back on the old sodium cromylin drugs again. Le sigh, this is getting very old.

We're talking about hiring someone to come in daily to clean because I don't have any balance and cannot do so many things. Sylvie is still in Nicaragua and she only cleaned once a week. 

My new normal sucks.

Comments

Post a Comment

Popular posts from this blog

A Missed Stompism

One anecdote I neglected to pass on that had Jim and I puzzling and laughing. Stompy, Jim and I were talking about her upcoming European trip when she mentioned she was going to be in Amsterdam a few days. I squeal and tell her had I know I would be loading her with money and a shopping list for the Van Gogh museum. I really, really, REALLY want that entire set of sweet Samsonite with his almond blossom painting on it. She turns to us and tells sue she's going to the Sex Museum instead. Oh holy crap!
Read more

Bottomless Betty and Blocking the Aunt Heap

Image
  The Chesapeake Bay Bridge last weekend. So where have I been? Back to Louisiana and then up to Maryland. I wanted to check on my mother in her assisted living. It didn't go well at all, even if I stayed ten days. One of my aunts in the Aunt Heap nicknamed my mother 'Bottomless Betty' after she suddenly developed the inability to wear bottoms at all, no pants, no panties, no skirts. It was most bizarre and had a sudden onset. Her dementia has gone haywire in the few months she's been in assisted living. I'm not entirely sure she knew who I was either. This was a shock, her mental status slid so fast it was scary. Did what I could, talked to the folks in the admin office seeking a way to help her. My mother's doctor had tried a drug to slow the dementia but all it did was cause my mother to hallucinate.   Got home on Tuesday night, taking that long airplane ride from Washington, DC to my home near Tamarindo, Costa Rica. Human Greek chorus and alarmist member of...
Read more

Strange Days and Orchids

Image
Water feature from the Orchid Garden near San Jose. Well, it's been a strange week or two. I've lost days to this silly ankle thing. Took off the boot at a week to start doing physical therapy movements, made it two days and now the boot is back on and I'm down to two pain pills. It's healing so slowly this time. Have to do a medical follow up this week. Several days ago we went to a party for a lady we know who is throwing in the towel and going home to the U.S.A. Katie was trying to do that thing that is impossible here on the Gold Coast -- live as a gringo without a steady monthly income. Even a social security pension will not cut it here. It's expensive, but likely not as expensive as life in the U.S.A. is getting lately. Read that there has been a 40% jump in the price of vegetables and fruits last month. Deporting the folks that do all the grunt work there was one very bad idea mixed with those insano tariffs. We have high tariffs here and it inhibits the amo...
Read more